If anyone saw my attempts l to this far with this new blog, they would say my brain isn't back yet but that it's on the right track. I've been wanting to blog for some time but have been too tired and out-of-touch to actually do one. The many changes I've just had to make will be one of my own little unfunny secrets.
First I want to thank everyone for their support and for their blog appreciation. It hasn't been one of my favorite roller coaster rides.
About 2 weeks ago we decided that the new treatment trial at Georgetown held out the best hope in a new trial. But then I progressively got sicker- more nausea, more tiredness and more pain I'm often asked how I feel on a pain scale of one to ten but I always feel that's too subjective a measurement. I had a brief encounter with a 10 pain in April 2011 after Yeo's pan can surgery when the the feeding tube was removed but the pain ended in much less than a minute. I had been feeling for some time that the pain was increasing and that my body must be filling with cancer. The doctors still felt that G-Town was my best approach and maybe only chance for a cure and would require a series of tests to even make it into the trial.
My categorization of events is likely off greatly due to the effects of the medicines.
I finally told Linda I wanted to drop future treatments. After lots of consultation, she agreed that I couldn't survive additional treatment and it was time to find out about end of life care. Linda did her usual extensive research and we decided to end the treatment. Wynne, my GP whom I trust extensively also agreed.
So now I am taking no more general relief pills but do take extensive pain relief pills, such as Dilaudid and occasionally Percoset, and mostly per, Linda, Oxycontin which cause a lot delusions. I no longer eat food or drink luiids and see a hospice care nurse at home.. As long as I take my pain pills
I'm really struggling writing this blog entry.
I had a wonderful day on Sept 15 when my college roommates visited form Cal., Fla. and NY. I've had a lot of great visits from elsewhere.
I have trouble wrapping my brain around the concept that I am making my own final decisions.
I am disappointed in the quality of this blog and will allow Linda to make any amendments she feels are necessary. My mind is really gone and I'm tired from having a lot of visitors today. I should have just dictated to Linda or Rachel as they offered. I have no idea when I will shut down completely but thought it would more fun blogging again. It's amazing that so far without food and drink I'm actually feeling better than I was.
Elkan - Friday night - Hoping to blog again soon.
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